My health anxiety story

My Health Anxiety Story

Over the last few years, it feels like talking about anxiety has almost become one of those blogger trends: like pineapples, or crown braids, or wearing Birkenstocks, even although you know they make you look a bit like a hobbit.

I realise that’s probably going to turn out to be a controversial thing to say (The “anxiety-is-trendy” thing, I mean, not the “hobbit” comment. Although, that too, now I come to think of it…), but, well, first came all of the “I suffer from anxiety,” confessions, THEN came the, “I hate the fact that every blogger around is suddenly claiming to suffer from anxiety, just because Zoella did it it first!” posts – and as soon as you have a backlash, you know you’re dealing with a trend, right?

Health anxiety, on the other hand, has never been trendy.

It probably never will be. Health anxiety – or hypochondria, as it’s perhaps better known – has always been one of those comedy illnesses: the mental health problem it’s OK to roll your eyes at, because it’s just a bunch of silly people who take themselves off to bed as soon as they sneeze, and think every little twinge is probably cancer. It’s hard for a lot of people to take that seriously, or to have any sympathy for it, so those of us who suffer from it end up keeping quiet, for fear of being dismissed, or even laughed at.

I’ve had both of those responses over the years, and while I’d never wish any kind of anxiety on anyone, (Just to make things even more fun, I ALSO have generalised anxiety disorder – and yes, that’s been diagnosed by numerous doctors and psychiatrists: I promise I’m not just trying to copy Zoella…) it does occasionally make me wish they could understand, just a little bit, what it’s like.

So here’s what it’s like:

It’s like permanently standing in line for the roller-coaster you’re scared to death of. The churning stomach, the sweaty palms, the conviction that THIS will be the thing that will kill you, and that there’s no way to avoid it. All of this, without the adrenaline rush afterwards, or the feeling of blessed relief when it’s finally over, because you know that when you finally get off, you’re just going right back to the end of the line again.

It’s like having the joy removed from every last bit of your life, because you’re so scared of what might be to come that you can’t take pleasure in anything any more.

It’s like being on an airplane that suddenly hits turbulence at 20,000 feet, right in the middle of the ocean. You would do anything – anything AT ALL – to just not be on that plane anymore, but you know the only way is down, and that all you can do is cling helplessly to the arm rests and wonder if it’ll be the fear that kills you, or the crash itself.

It’s checking your symptoms multiple times an hour: sometimes even multiple times a minute. Googling them. Researching them. Checking them again. Are they still there? Or have they gone? Maybe you should try to MAKE yourself feel that strange twinge in your side again, just to see if you can? Maybe if you just press right here? Did you feel it that time? Does that mean it’s back? Or did you just prod your own stomach so many times that now you’ve actually created a symptom that didn’t actually exist? Maybe if you just check one more time…

My health anxiety storyIt’s watching a TV show or reading a book in which someone has a certain symptom… and then immediately convincing yourself YOU have that symptom, too. It’s taking a two-mile trip to the post office in the next town, because the one that’s right around the corner has a poster right next to the scale you weigh your parcel on, saying, “DO YOU HAVE THESE HIDDEN SIGNS OF BOWEL CANCER?!” So far, you’ve avoided reading the poster, or finding out what the “hidden signs” are. But now that you know there ARE hidden signs, you’re going to obsess over whether or not you have them: to the point where you can’t think of anything else.

It’s hearing someone casually mention an acquaintance who died of cancer, and then lying awake all night worrying that it will happen to you, too. It’s asking the people who know you not to tell you those stories: and having them laugh, and roll their eyes, before launching into yet ANOTHER story, which will lead to two more sleepless nights, at least.

It’s like raaaaiiiin, on your wedding day, it’s a free… wait: that’s an Alanis Morisettte song, isn’t it? Sorry, got carried away there…

It’s not a joke, is what I’m saying. It’s not something you can just forget about or “get over” – no matter how many times people tell you to. It is, in fact, a form of Obsessive Compulsive Disorder – or so the psychiatrist I was referred to told me. I had never thought of it in that way, but he explained that people with health anxiety have an obsessive compulsion to check their symptoms (often to the point where they create new ones), worry about them, then rest and repeat. And, yeah, that definitely sounds like me. Here, for instance, is the reason I finally plucked up the courage to visit my doctor and get that referral: a list of every symptom and health-related worry I’d had over a three month period around 8 years ago, which Terry had kept in a bid to persuade me to GET HELP for the health anxiety that had, at that point, taken over both our lives:

leukaemia
brain tumour
meningitis
skin cancer
eczema
ovarian cancer (left)
ovarian cancer (right)
leukaemia again
skin cancer again
heart palpitations
cancer under ear
Cancer on cheek
groin cancer
Cancer of the lymph nodes
heart palpitations again
ovarian cancer (right)
brain tumour again
aneurysm
ovarian cancer again (right)
bleeding swollen gums (leukaemia)
throat cancer (sore throat)
brain tumour because of headache
ovarian cancer
stroke because of sore jaw
brain tumour because of forgetfulness
brain tumour because of migraine
throat cancer because of phlegm
ovarian cancer , both sides for three weeks
brain cancer because of light to dark eye problems
baldness for a month now
abdominal aneurysm for two weeks
lymphoma
brain tumour because of migraines

This was over a space of just three months, back in 2008. THREE MONTHS, people. Fun times, huh?

After that, I finally went to see the doctor. This was hard for me, because there are two types of hypochondriac in the world: ones who basically set up camp in the doctor’s office, so they can consult him/her every time they sneeze, and ones who avoid any kind of medical situation at all costs. Guess which camp I’m in?

If you’re having trouble guessing, let me just tell you that, when we moved to our current home, it took me a full six-months to register with the doctor here, and even then I only did it because I needed to renew my birth control prescription, and they wouldn’t do it without seeing me first. When I finally went in, Terry had to call ahead and warn them that I wouldn’t be bringing the mandatory urine sample, because waiting for the results of whatever test they’d do would cause me so much anxiety I’d literally be unable to function. He also had to accompany me to the appointment, because I was almost crying with nerves. It’s THAT bad. And actually, that was during a time when my health anxiety was fairly LOW – so you can imagine how hard it was during those awful three months in 2007/8, can’t you?

living with health anxiety: my story

So, back in 2008, at the height of my health anxiety, I went to the doctor and he agreed I should be referred for counselling. I got an appointment the following week with a psychiatric nurse, whose job it was to assess me – and who met me at the door of his office with the news that he had a student observing him, and did I mind if she stayed?

Actually, I DID mind if she stayed. It was hard enough for me to tell even ONE person about my health anxiety, let alone TWO: but I was so freaked out by the fact that I was in a doctor’s surgery that I blindly agreed, and then walked into the room, to be faced with a hostile-looking teenage girl (I mean, I’m assuming she wasn’t ACTUALLY a teenager, but she looked like one, and was dressed like one…), who sat in the corner rolling her eyes (yes, literally), the whole time I was there.

I left with a workbook on cognitive behaviour therapy, which I was instructed to work my way through. It didn’t help in the slightest. A few weeks later, I was referred to the psychiatric unit at the local hospital: a move which was almost breathtaking in its stupidity as far as I was concerned, because one of my biggest fears of all? Is hospitals.

I think most people assume that, for hypochondriacs, the main fear is, well, DEATH. It isn’t, though: or, at least, not for me. I mean, I DO fear death… but I mostly fear everything that comes before it. The hospitalisation. The operations. The general anaesthetic – the idea of which scares me so much I’ve made Terry promise me that if I ever need one, he’ll just let me die. (I have a sneaking suspicion that he is lying to me when he agrees to this…) I’ve feared these things for as long as I can remember: when I was a little girl, with tonsillitis, a doctor once suggested that I have my tonsils removed, and I screamed the place down in horror. I still have my tonsils, needless to say – and everything else, too.

The great irony of my situation, you see, is that, despite having what the psychiatrist I was finally referred to described as the most severe case of health anxiety he’d ever seen, back then I was the healthiest person I knew. I’d never been hospitalised, never had an operation. Yes, I’d had the usual run of childhood illnesses, and a few doses of the flu, but nothing more serious than that.

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Why am I so scared of hospitals, then? Honestly, I don’t really know. I suspect it comes purely from observation. As a child/young adult I watched three of my grandparents go through long illnesses, including many months in hospital, and many events that are still burned on my brain, even now. In my twenties, meanwhile, Terry got kidney failure and an eventual transplant… which meant more time in hospital, and more horrific scenes. Unfortunately, most of the hospital experiences I’ve witnessed have been bad ones – some of them Very, Very Bad Indeed. And, of course, lots of people go through this kind of stuff: I’m not trying to claim to be some kind of special snowflake here, or to say I’ve been particularly unlucky, because it could all have been so much worse. (Or some of it could, anyway. Some of it quite literally could not have been any worse: you’re just going to have to trust me on that…) For some reason, though, while most people are able to process these experiences in a rational way, I just can’t. There is nothing rational about health anxiety: and, for me, there’s an almost Pavlovian response to even the suggestion that I take any kind of medical test, or visit a doctor for even the simplest of reasons.

The psychiatrist didn’t help me. His main suggestion was that I try group therapy, which seemed like the worst idea ever to me (In addition to my health anxiety, I also have a generous dose of social anxiety, and I’m at the extreme end of the “introvert” scale. As I said, it’s hard for me to talk about my issues with even one person: so the idea of having to bare my soul to a group of complete strangers – who would then presumably start listing their OWN health concerns, thus giving me even MORE things to worry about – was just unthinkable to me…), so he agreed to refer me for a course of psychotherapy. “You’ll get a letter in the mail with the first appointment,” he told me. “But be warned: the current waiting list is two years…”

Two. Years. I promise I’m not making this up. And honestly? I was relieved to find that I wouldn’t have to address the issue for at least two years, because, the fact was, I didn’t really want to. I didn’t want to confront my fear: mostly because the sessions, I was told, would be held in the hospital – and asking someone with health anxiety to attend hospital every week is like deciding to hold your Arachnophobiacs Anonymous meetings in the spider room at the zoo, isn’t it?

That letter never did show up: and, thankfully, it didn’t really matter, because gradually I started to get better. I don’t know why THAT happened, either: all I know is that, over time, I stopped worrying so much about my health. Yes, I had that freak out when I had to register with the new doctor three years ago, and there have been a few minor bumps in the road since then, but they’ve been small ones, and I’ve somehow managed to deal with them – I have no idea how. What I DO know is that I’d been fairly anxiety-free for several years… right up until I got pregnant.

Pregnancy was always going to be a challenge for me, given my various issues, but, in my case, my anxiety was only increased by the fact that two of my biggest pregnancy-related fears came true, and I had a miscarriage, followed just a few weeks later by an ectopic pregnancy – which had been my biggest fear of all, and something I’d obsessed over for as long as I’d known what it was. (Which was a long time, actually: I know it’s something a lot of people just aren’t aware of, but my mum had an ectopic pregnancy a couple of years I was born, and I’d grown up knowing that it was one of the reasons I didn’t have any brothers or sisters) In the hospital I was diagnosed in, even the nursing staff couldn’t believe that the women who’d come to them obsessing over the possibility of an ectopic pregnancy had been the one to actually end up having one, but yup, that happened: and it made my third pregnancy, five months later, one of the most difficult experiences of my life.

Why am I telling you all of this? Because, as I said at the start of this post, health anxiety isn’t one of the “trendy” conditions. It’s not one that people really understand – or even WANT to, really, preferring to dismiss it is a bit of a joke, really.

It’s not a joke, though: or, if it is, it’s not a very funny one. So, if you, or someone you know, is suffering, I hope this post will help you feel a little less alone: and a little more confident that it IS possible to live with health anxiety – and even to go through something like pregnancy without (totally) losing your mind.

After all, if I can do it, anyone can…

 

COMMENTS
  • Anonymous

    REPLY

    I have never read something so relatable, I suffer with health anxiety. It is not massively talked about on the internet and you are right everyone rolls their eyes as soon as I mention yet another symptom or problem..thank you for describing it in such a relatable way! The rollercoaster comparison is so true.

    April 28, 2018
    • CC

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      This is the first truthful blog iv read and it’s like looking in a mirror. I almost have to brace myself getting out of the car to go to a doctors appointment. I recently had blood tests and was convinced that I would get a phone call asking me to book an appointment which lead to 4 days of nearly jumping out of my skin if my phone rang or delaying going home in case they had left a voicemail on the hone phone. I try so hard to think rationally and keep saying to myself to trust my Doctor but then the thoughts take over and I start searching google for answers. Iv just submitted a online self referral for help. I feel very proud of myself for doing this but I am dreading the next step. I just wish I could wake up and look at things the way others do take each day as it comes and enjoy life.

      December 29, 2019
  • Megan Killpack

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    Thank you for this story. I struggle with Health Anxiety after watching my father die of ALS, although I was really young it was engraved in my memory. I just got off of antidepressants with hopes of having a family but I have been discouraged due to my anxiety creeping back into my life. Thanks for sharing your experience, it feels good to know other people are going through or have gone through similar situations.

    May 3, 2018
  • TJ

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    Thank you for writing this. My journey with health anxiety has been a long one and mirrors yours in many, many ways. It’s a relief to find someone who has experienced the same thing.

    August 2, 2018
  • anonymous

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    thank you for your story I have just through anxiety and just getting better and trying to build up my life and focus on studying at this time, your story is really interesting and shows people what it is like to go through anxiety. its really good to know that other people have gone through what I have went through.

    September 7, 2018
  • Thank you for writing this. I am going through a bad patch with my health anxiety and instead of playing Dr Google this morning, I decided to search for ‘health anxiety blogs’ and came across your wonderful post. I can relate to so many of these things, including making myself sick and the paralytic fear. It’s comforting to know I am not alone. Thank you xx

    November 3, 2018
  • LT

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    I’ve come back to read this a few times over the last 2 weeks. I’m currently suffering a debilitating bout of health anxiety. Mostly about lymphoma, but occasionally I hop over to heart stuff for a day or two but then head back over to lymphoma.

    I know I need to see a therapist, but first I just want all the reassurance in the world that I don’t have lymphoma (I went to the doctor yesterday in sheer panic…he was “not concerned” but also didn’t reassure me enough).

    Anyway, thanks for the relatable and, yes, often humorous look at health anxiety.

    May 8, 2019
    • HS

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      Thank you for posting this. After coping with anxiety and panic disorder for years I’m just experiencing my first and most severe bout of health anxiety (that I’m aware of – pretty sure I’ve always had it) and it’s terrifying.

      I’m really struggling and I feel like it’s taking up my every waking moment so hearing that other people have been through almost exactly the same thing has made me feel the most normal and at peace I’ve felt in months.

      Thank you again!

      November 25, 2019
  • Clare

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    Thank you for sharing your health anxiety story. I too am a sufferer ( I work part time and I have four children a lovely husband but an extended family who roll their eyes as soon as I utter a word regards to my worries. As as result I mainly suffer alone. In my head. I try my best to live in the moment but truthfully the joy of life is always slightly tainted – a bit like the Sunday night feeling that there is school the next day. It’s reassuring to know I am not alone and I wish you and all of us suffering some kind of mental enlightenment. Xxx

    June 13, 2019
  • Brilliantly written. Us health anxiety gang have to stick together. It is bloody horrible but I am determined to get through this blip like I’ve done before.

    June 21, 2019
  • Natasha

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    Thank you so much for writing this. I’ve recently just realised that all my constant worrying and clouded days of concern are not normal and are in fact health anxiety and reading your words has made me very emotional. You described it perfectly and It’s very reassuring to know other people are going through the exact same thing as me. Thank you so much for taking the time to write this.

    August 2, 2019
  • I’ve been reading all of your Pregnancy and Parenting blog posts lately because of your tokophobia. (Thanks for giving me a term for what I feel about pregnancy!) I knew you had health anxiety and were terrified for your elective C-section (again, thank you so much for writing about that and letting me know it was an option!), but I didn’t think to search your blog for a health anxiety-specific post.

    This describes me down to the ground. It makes so much sense that it’s a form of OCD – the intrusive thoughts are real with health anxiety. Thankyouthankyouthankyou for this blog and your candid, honest, personal stories. They help so so much. I’ve bookmarked so many of your posts for if I eventually get pregnant – I’ll be re-reading them religiously.

    Also, currently going through some serious health anxiety-related fear of DVT, so this post came at exactly the right moment. You’re the best.

    August 5, 2019
  • Sarah

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    I am so glad I read this. I have suffered with health anxiety on and off for a number of years. I grew up an anxious child and have suffered from excessive worrying for as long as I can remember. Social anxiety and mild ocd have been a problem too as I’ve got older.
    I find my health anxiety comes around at least once a year and can last for months. It can be triggered by any number of things (last year it was my grandad passing away) and I try to rationalise it to myself and have mixed success. I too hate going to hospitals/ the doctors mostly out of the fear I will get diagnosed with something awful.
    I have tried getting therapy for it through nhs but perhaps I wasn’t a severe enough case. I am thinking of going private as I would like to have the tools to cope with this when it rears it’s ugly head again 🙁
    It’s comforting to know that I’m not the only one who has health anxiety and fears going to the doctor- most things I’ve read say that those suffering tend to visit the doctor constantly and that never rang true for me.

    October 4, 2019
    • CR

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      I’ve been googling colon cancer symptoms for weeks (before that was breast cancer and although my mammogram was normal I googled how many cases of breast cancer are missed during mammogram.) So much so that I think I’ve talked my body into having these symptoms. I’ve put off going to the dr for fear of dreadful news. I finally made an appointment last week but am terrified to go. I will not miss this appointment though because I can’t do this to my husband any longer – the constant discussion of my self diagnosed cancer. Your blog was a relief to read. Thank you for posting and being so honest. I’m sorry you’re dealing with this (as I am obviously dealing with as well) but I thank you for your honesty. I am relieved to read I’m not alone.

      January 21, 2020
  • Kirsty

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    This is so good to read I suffer with health anxiety and it’s horrible nobody understands unless they have it. Thank you this is so true and I’m glad I’ve came across this to read makes me feel I’m not the only one that’s suffer and there is actually people out there that understand.
    Thanks again

    February 1, 2020
  • Dana

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    Wonderfully written, 100% relatable. I started suffering in 2012 after the birth of my third child. I had many of the same worries you listed. Unlike you, I was the type to run to the doctor or ER for reassurance repeatedly (nearly daily). After being put on medication, I was able to manage my health anxiety for years. By December of 2019 I had been off of medication for 3 years when an old enemy started to appear in my life again. At this point, my doctor has dismissed me and claims I’m healthy (same happened in 2012). I am receiving counseling, hoping to get out of line on the “roller coaster of doom” you described. Thank you for sharing.

    February 26, 2020
    • Sally

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      I can really relate to this. My HA did exist before kids, but it definitely got worse after pregnancy. I had a terrible 2013 thinking I had everything and after a while that settled and I was fine for a year or so then it all came back after my second child and I’m always worried about symptoms… it’s gets particularly bad if I have a couple of symptoms at one and put them all together as one a ‘sign’ of something serious. I’ve noticed I’m worse during certain parts of my cycle too- anytime there’s a bit hormonal shift I worry more. It’s awful and I feel sad for us all!

      February 27, 2020
  • Carol

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    Thank you for sharing. I have just started to admit to my family that I suffer terribly from health anxiety, they are lovely but they don’t understand. I have felt desperate recently and reading about others experience really makes me feel less alone. I pray to reach a point of relief X

    March 21, 2020
  • Just come across this post now. Thank you so much for sharing, it’s really relatable. As you said health anxiety is still laughed at and isn’t “trendy”, but I feel that the more people who share their stories, the more it will help.

    I’ve had health anxiety for about 20 years. When I was 13 my grandad died of Non-Hodgkins lymphona, and also I knew two people who went to my school who died of cancer and a brain tumour. My main worry is cancer/brain tumours but also MS and even dementia/losing my mind. In 2008 I honestly thought I was losing my mind and had some form of dementia because I was forgetting things, despite being only 24 at the time. It’s a constant worry, although I have tried CBT, therapy, self help and other things over the years. I also have depression, OCD and general anxiety. In recent months the depression have been worse but every now and then the HA “spikes”.

    Thanks again for sharing. It helps to know that other people experience the same things, although of course I’m sorry that you have it too. 🙂

    April 27, 2020
  • Sally

    REPLY

    Thank you for sharing , as others have said it’s like finding a little island of understanding in a world where most people are kind but just don’t get it. Having a horrid bout of HA now and searched for help with HA rather than playing how long will I live once diagnosed . Unless you’ve experienced the overwhelming terror and that rollercoasters where relief is brief I don’t think you can truly understand it . Witty, emotive writing thank you 😊 x

    May 5, 2020
  • Kay Caton

    REPLY

    Gosh, I feel like I was reading my own thoughts when reading this post. I can 100% relate to all of this. I feel like I’m currently at the peak of health anxiety; I had to go to A&E with a suspected clot in the lung – all good. One week later I had the ambulance turn up at my house with suspected cardiac symptoms – all good. I even got referred to a Cardiologist with the concern there was something bigger go on – all good. All of this was off the back of experiencing weeks of chest tightness, aching in my arms and back, shortness of breath etc. which turns out is stress, apparently.

    I’ve never been anxious over symptoms I experienced before, but after weeks of this I’ve suddenly become 10x more anxious over a small throb in my head which is likely due to the bottle of red me and husband drank, or the stomach cramp when I’m not even due my period, or even the slight tingle in my leg which is more than likely because I haven’t moved off the sofa for a couple hours to get my blood pumping.

    Thanks for sharing your story.

    Kayleigh x

    May 17, 2020
  • Sam McPherson

    REPLY

    This post makes me want to cry because of how similar we are. I don’t know you, but reading this gave me comfort. I have severe health anxiety and reading your list of things you felt like you had was me in 2016. My husband took me to the ER at least 6 times in 3 weeks and the primary care Dr several times too. I had blood work again and again and CT scans all coming back negative but I couldn’t stop. I was so convinced cancer was going to kill me. And then like you, I got pregnant and my worst fear, the rarest thing ever, an ectopic pregnancy happened to me. I almost passed out when I found out. My anxiety has come and gone sometimes worse than others , but now it seems to be spiking again. Fear of melanoma and I’m only 23. Its so hard because I don’t even have any weird moles but I can’t stop thinking about it. I don’t want to be constantly scared anyway, I took great comfort in hearing your story. Thank you for being brave enough to put yourself out there.

    May 20, 2020
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